Wiki PHACE Syndrome

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I bill for a pediatricians office, and the doctors has diagnosed a patient with PHACE Syndrome.

Otherwise known as (Posterior fossa malformations–hemangiomas–arterial anomalies–cardiac defects–eye abnormalities–sternal cleft and supraumbilical raphe syndrome).

I have scowered the internet, AAC site, and my ICD-9 book trying to find a code for this, and I can't locate one.

Has anyone else ever coded this before?:confused:
If so, what code did you use??

Thank you, have a great day!!
I haven't had this before but what about code 759.89? I went into congenital syndromes affecting more than one system, specified.