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ICD-10-CM Updates for Limb-Girdle Muscular Dystrophy LGMD

Presenter Nicholas Johnson MD
Broadcast Date 11/16/2022
Time 10:00am PT / 11:00am MT / 12:00pm CT / 1:00pm ET
Presentation Length 60 minutes
Price $65 (Non-members $85)
ICD-10-CM Updates for Limb-Girdle Muscular Dystrophy LGMD Webinar

Learn More About New Diagnostic codes for Limb-Girdle Muscular Dystrophy

With recent advancements in treatment and care approaches in neuromuscular diseases, new ICD-10 diagnostic codes are now available for the limb-girdle muscular dystrophies (LGMDs). This webinar will describe how to use the new diagnostic codes, why its important to use the code that matches the genetic diagnosis, and how these new codes will advance targeted treatments, care approaches, and disease understanding. Previously, the limb-girdle muscular dystrophies were coded using general muscular dystrophy codes, contributing to poor understanding of disease prevalence, epidemiology, and progression. Furthermore, with targeted treatments, including gene therapies, in clinical testing, using precise ICD-10 diagnostic codes that match the genetic diagnosis will be more important than ever. Join us as the experts discuss the differences between the LGMD subtypes, what code to use for each genetic diagnosis, and more.

Why is this topic important?
ICD-10 diagnostic codes were created for the limb-girdle muscular dystrophies and recently added to the codebook on October 1st, 2022. These new diagnostic codes are much more precise in than the previous general codes as they are based on the genetic underpinnings of the disease. Using the diagnostic code that matches the genetic diagnosis will advance disease understanding, treatment development, and lead to better outcomes for the LGMD community.

Who would benefit from this topic?
All medical coders who code for medical professionals that treat patients with LGMD. Such medical professionals include, but are not limited to, neurologists, physical therapists, general practitioners, dieticians, genetic counselors, and more.

What information or new skills will the attendee take away from this webinar?
Attendees will know precisely which new ICD-10 diagnostic code to use when an individual with LGMD receives care at their institution, and the medical professional records the diagnosis within the medical record.

What’s the presenter's background/expertise on this topic?
The Muscular Dystrophy Association, at which Paul Melmeyer is the Vice President, Public Policy and Advocacy, led the initiative to obtain these new ICD-10 diagnostic codes for the LGMDs. The primary presenter will be Dr. Nicholas Johnson of the Virginia Commonwealth University. Dr. Johnson is an international expert in LGMD and was involved in this effort throughout.

Nicholas Johnson MD

About The Author

Nicholas Johnson MD

Dr. Nicholas Johnson treats adults and children with both common and rare neuromuscular conditions — yet his work doesn’t end in the clinic. He dedicates significant time each week to laboratory research, and is part of a team at VCU Health working to advance the treatment of genetic muscle disorders, with a special emphasis on muscular dystrophies. 

“Disorders of the nervous system are complex, and require significant research to advance our understanding of them. I have a desire to better understand how diseases occur and how best to treat them,” says Dr. Johnson, who, in addition to his role at VCU Medical Center and the Children’s Hospital of Richmond at VCU, is Neuromuscular Division Chief in the VCU School of Medicine’s Department of Neurology. 

In his clinical practice, Dr. Johnson treats conditions such as muscular and myotonic dystrophies, Charcot-Marie-Tooth disease, and a variety of other nerve and muscle conditions such as spinal muscular atrophy. “I want to not only provide patients with care, but also be the one creating treatments and therapies that could change their lives,” he says. In particular, the neurologist is excited about the development of gene-based therapies, which have revolutionized clinical trials over even the last few years. “We want VCU Health to be on the front lines of new developments to help our patients improve their lives.”

And as an important part of that treatment, Dr. Johnson says, is to have a comprehensive care team. He regularly sees his patients in our multidisciplinary clinics at the N.O.W. Center, Ambulatory Care Center, and CHoR. These clinics are home to physical and speech therapists, social workers, and other health professionals who work to provide the best possible supportive care alongside neurologists like Dr. Johnson.

In 2018, the Muscular Dystrophy Association awarded a $700,000 clinical research grant to Dr. Johnson to establish the Limb-Girdle Muscular Dystrophy (LGMD) Clinical Research Network. The work of the physician and his team will facilitate the development of tools and infrastructure needed to efficiently and effectively conduct clinical trials and accelerate treatments for LGMDs. This diverse group of disorders contains many subtype conditions, all of which include weakness and atrophy of the muscles around the hips and shoulders. 

Dr. Johnson is board-certified in neurology, neuromuscular medicine and neuromuscular pathology by the American Academy of Neurology, and serves on its government relations committee.

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